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Tag Archives: HAE

HAE – One Mother’s Battle With a Lifelong Illness


I think I have told this person about my condition about 300 times. “Is it your Thyroid?” “No, it’s a condition called Hereditary Angioedema. Remember when I missed your birthday party because I was sick?” “Yeah, I just assumed you didn’t want to come.” When you have an extremely rare disease, these conversations happen all the time. People assume you miss events because you don’t want to attend, assume you ... Read More »